Canadian Ectodermal Dysplasia Syndromes Association
Our mission is to enhance the quality of life of those impacted by ectodermal dysplasias through education, service, and support while serving as a national information and networking resource.
"Every individual has his own story to tell. Mine is simply engraved on my skin." – Abde Maziane, who has HED.
Have a story you would like to share? Pictures or news about your journey with ectodermal dysplasia are welcome – we all learn from each other’s experiences. Please contact us and send any material you would like us to run in our next eNewsletter.
CEDSA is a registered Canadian charity BN# 813864444RR0001