Welcome to CEDSA

Our mission is to enhance the quality of life of those
impacted by ectodermal dysplasias through education,
service, and support while serving as a national
information and networking resource.

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"Every individual has his own story to tell.
Mine is simply engraved on my skin." – Abde Maziane, who has HED.

Latest CEDSA News & Announcements

CEDSA Cares Kit - At CEDSA we are committed to improving the quality of life of those impacted by an ectodermal dysplasia syndrome. A new initiative is underway to build a community education resource kit called the CEDSA Cares Kit that parents, individuals and caregivers can use to educate others about ectodermal dysplasia. The goal is to give you the resources you need to help inform teachers, coaches, community leaders, dentists, even your family doctor about ectodermal dysplasia and what is needed to ensure healthy and safe participation in any activity in your community. We are asking for your feedback on ...

Tips, Success Stories & Inspiration

A Super Hero Like No Other - Abde Maziane and MM'Arts Pictures created an inspirational video about living with ectodermal dysplasia. How do you see yourself? Watch the video to see how Abde views having HED. A different perspective can change your world and the world of those around you. For all of us at CEDSA, like Abde, you are a super hero. Thank you to Abde and MM'Arts Pictures for sharing with CEDSA....

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