eNewsletter Archives

Ectodermal Dysplasia Society – U.K. Winter 2014

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Ectodermal Dysplasia Society – U.K. Autumn 2013

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Ectodermal Dysplasia Society – U.K. Summer 2013

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International ED Network Newsletter – Summer 2013

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Ectodermal Dysplasia Society – U.K. Spring 2013 – Issue 2

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Ectodermal Dysplasia Society – U.K. Spring 2013 – Issue 1

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Spring/Summer 2011 Edition

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Fall 2012 Edition

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Spring 2013 Edition

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Winter 2013 Edition

On Being An Athlete With Ectodermal Dysplasia
by Kim Goulding, a CEDSA supporter since 2010

I have a very athletic 12-year-old boy; his name is Kyle. He plays hockey, soccer, baseball and works out at the gym three to four times a week. Oh yeah, and he also has ectodermal dysplasia ... Continue Reading