Latest News

Below you will find an archive of CEDSA’s latest news and announcements.

CEDSA Cares Kit

At CEDSA we are committed to improving the quality of life of those impacted by an ectodermal dysplasia syndrome. A new initiative is underway to build a community education resource kit called the CEDSA Cares Kit that parents, individuals and caregivers can use to educate others about ectodermal... continue reading

NFED Family Conference

The National Foundation for Ectodermal Dysplasia (NFED) will be holding its annual conference this year in Portland,Oregon. Themed Bridges to Inspiration, the conference will run July 6-7, 2018 at the DoubleTree by Hilton Portland. Canadians welcome!

This is an amazing opportunity... continue reading

XLHED Research Update

Edimer Pharmaceuticals, which was researching the recombinant protein EDI200 to cure XLinked Hypohydriotic Ectodermal Dysplasia XLHED), has unfortunately ceased its work.

The good news comes from Germany, where Professor Holm Schneider, with the support of the hospital where he practices i... continue reading

Castleford Fishing Derby 2015

Three years ago, when CEDSA was in the very early stages of its foundation, the volunteer committee and the community of the Ottawa Valley came together to help us get our start. With funds raised from the annual fishing derby, held on free family fishing day in Ontario, CEDSA was able to get the... continue reading