Family Support Program

CEDSA was founded with the goal of providing assistance to Canadians impacted by ectodermal dysplasias to supplement government, community and family contributions. Thus the Support Fund Program was established and we look forward to receiving your application.

We encourage you to read the guidelines carefully, and provide as much information as possible on your application to ensure success. Applications are reviewed several times a year by the Board and must have complete Board approval before funding will be provided.

Click here to download the guidelines as a PDF
Download the Application Form (PDF) (Microsoft Word)

Support Fund Guidelines and Policy

In response to the needs of Canadians impacted by ectodermal dysplasia syndromes we support, we have established the Canadian Ectodermal Dysplasia Syndromes Association Support Fund to provide small grants to fund equipment, treatment or care needs for supporters who are affected by one of the Ectodermal Dysplasias for any of the following needs:

Cooling Garments and Products

  • Dental treatment;
  • Wigs/hair pieces; and
  • Any other appropriate support deemed applicable by the Canadian Ectodermal Dysplasia Syndromes Association.

Who may apply?
All supporters who have a Canadian citizenship or permanent resident card and currently reside in Canada can apply. Those over the age of 18 may apply on behalf of either themselves or their dependents providing such person has an ectodermal dysplasia syndrome.

How much can applicants apply for?
While financial support is not means-tested, the following criteria will be taken into account when allocating full or part funding:

  • The applicant’s ability to pay some of the cost themselves;
  • Whether alternative funding avenues have been exhausted; and
  • Value for money.

There is no minimum or maximum amount for this grant. Allocation will very much depend on how many eligible applications that the Association receives in any one year.