At CEDSA we are committed to improving the quality of life of those impacted by an ectodermal dysplasia syndrome. A new initiative is underway to build a community education resource kit called the CEDSA Cares Kit that parents, individuals and caregivers can use to educate others about ectodermal dysplasia. The goal is to give you the resources you need to help inform teachers, coaches, community leaders, dentists, even your family doctor about ectodermal dysplasia and what is needed to ensure healthy and safe participation in any activity in your community. We are asking for your feedback on what you would find valuable to have in the kit. We’d love to hear from you. Post your ideas on our Facebook page, or contact us directly!