CEDSA Cares Kit

This is a resource tool being developed to help those with an ectodermal dysplasia syndrome or a parent or a caregiver of an individual with ED. Its purpose is to provide the information and resources you could use to help educate teachers, coaches, dentists, doctors and others you interact with in the community. The goal is to improve quality of life and participation in the sports, clubs, activities offered where you live!

We are seeking your input on what you would find useful in this kit. Please contact Meghan Howard to share what tools and information would be of the greatest assistance to you as we build this important resource.